Sökning: onr:"swepub:oai:lup.lub.lu.se:af3d2c99-8ded-46cc-bf45-b59efab61f1b" > The power of empiri...
Fältnamn | Indikatorer | Metadata |
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000 | 04651naa a2200553 4500 | |
001 | oai:lup.lub.lu.se:af3d2c99-8ded-46cc-bf45-b59efab61f1b | |
003 | SwePub | |
008 | 201102s2020 | |||||||||||000 ||eng| | |
009 | oai:prod.swepub.kib.ki.se:144760242 | |
024 | 7 | a https://lup.lub.lu.se/record/af3d2c99-8ded-46cc-bf45-b59efab61f1b2 URI |
024 | 7 | a https://doi.org/10.1080/0284186X.2020.18205732 DOI |
024 | 7 | a http://kipublications.ki.se/Default.aspx?queryparsed=id:1447602422 URI |
040 | a (SwePub)lud (SwePub)ki | |
041 | a engb eng | |
042 | 9 SwePub | |
072 | 7 | a for2 swepub-publicationtype |
072 | 7 | a ref2 swepub-contenttype |
100 | 1 | a Nilbert, Mefu Lund University,Lunds universitet,Bröstcancer-genetik,Sektion I,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Breastcancer-genetics,Section I,Department of Clinical Sciences, Lund,Faculty of Medicine,LUCC: Lund University Cancer Centre,Other Strong Research Environments,University of Copenhagen,Danish Cancer Society,Hvidovre Hospital4 aut0 (Swepub:lu)onk-mni |
245 | 1 0 | a The power of empirical data; lessons from the clinical registry initiatives in Scandinavian cancer care |
264 | 1 | c 2020 |
300 | a 14 s. | |
520 | a Background: In Scandinavia, there is a strong tradition for research and quality monitoring based on registry data. In Denmark, Norway and Sweden, 63 clinical registries collect data on disease characteristics, treatment and outcome of various cancer diagnoses and groups based on process-related and outcome-related variables. Aim: We describe the cancer-related clinical registries, compare organizational structures and quality indicators and provide examples of how these registries have been used to monitor clinical performance, develop prediction models, assess outcome and provide quality benchmarks. Further, we define unmet needs such as inclusion of patient-reported outcome variables, harmonization of variables and barriers for data sharing. Results and conclusions: The clinical registry framework provides an empirical basis for evidence-based development of high-quality and equitable cancer care. The registries can be used to follow implementation of new treatment principles and monitor patterns of care across geographical areas and patient groups. At the same time, the lessons learnt suggest that further developments and coordination are needed to utilize the full potential of the registry initiative in cancer care. | |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi0 (SwePub)303022 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Public Health, Global Health, Social Medicine and Epidemiology0 (SwePub)303022 hsv//eng |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Cancer och onkologi0 (SwePub)302032 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Cancer and Oncology0 (SwePub)302032 hsv//eng |
653 | a Epidemiology | |
653 | a health data | |
653 | a malignancies | |
653 | a outcome | |
653 | a parameter | |
653 | a quality registries | |
700 | 1 | a Thomsen, Linda Aagaardu Danish Cancer Society4 aut |
700 | 1 | a Winther Jensen, Jensu The Danish Clinical Registries (RKKP)4 aut |
700 | 1 | a Møller, Henriku The Danish Clinical Registries (RKKP)4 aut |
700 | 1 | a Borre, Michaelu Danske Multidisciplinære Cancer Grupper (DMCG)4 aut |
700 | 1 | a Widenlou Nordmark, Arvidu Federation of Regional Cancer Centers (RCC)4 aut |
700 | 1 | a Lambe, Matsu Karolinska Institutet,Karolinska Institute,Federation of Regional Cancer Centers (RCC)4 aut |
700 | 1 | a Brändström, Helenau Federation of Regional Cancer Centers (RCC)4 aut |
700 | 1 | a Kørner, Hartwigu University of Bergen4 aut |
700 | 1 | a Møller, Bjørnu Cancer Registry of Norway, Institute of Population-Based Cancer Research4 aut |
700 | 1 | a Ursin, Giskeu Cancer Registry of Norway, Institute of Population-Based Cancer Research4 aut |
710 | 2 | a Bröstcancer-genetikb Sektion I4 org |
773 | 0 | t Acta Oncologicag 59:11, s. 1343-1356q 59:11<1343-1356x 0284-186X |
773 | 0 | t Acta oncologica (Stockholm, Sweden)g 59:11, s. 1343-1356q 59:11<1343-1356x 1651-226X |
856 | 4 | u http://dx.doi.org/10.1080/0284186X.2020.1820573x freey FULLTEXT |
856 | 4 8 | u https://lup.lub.lu.se/record/af3d2c99-8ded-46cc-bf45-b59efab61f1b |
856 | 4 8 | u https://doi.org/10.1080/0284186X.2020.1820573 |
856 | 4 8 | u http://kipublications.ki.se/Default.aspx?queryparsed=id:144760242 |
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