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The current use of the EORTC QLQ-NMIBC24 and QLQ-BLM30 questionnaires for the assessment of health-related quality of life in bladder cancer patients : a systematic review

Rammant, E. (författare)
Ghent University,King's College London
Fox, L. (författare)
King's College London
Beyer, K. (författare)
King's College London
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Aaronson, N. K. (författare)
Netherlands Cancer Institute
Chaloner, R. (författare)
King's College London
De Padova, S. (författare)
Liedberg, F. (författare)
Lund University,Lunds universitet,Urologi - blåscancer, Malmö,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Urinblåsecancer,Sektion I,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Urology - urothelial cancer, Malmö,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Urothelial cancer,Section I,Department of Clinical Sciences, Lund,Faculty of Medicine
Wintner, L. M. (författare)
Medical University of Innsbruck
Decaestecker, K. (författare)
Ghent University
Fonteyne, V. (författare)
Ghent University
Perdek, N. (författare)
King's College London
Wylie, H. (författare)
King's College London
Catto, James W. F. (författare)
University of Sheffield
Ripping, T. M. (författare)
Netherlands Comprehensive Cancer Organisation (IKNL)
Holzner, B. (författare)
Medical University of Innsbruck
Van Leeuwen, M. (författare)
Netherlands Cancer Institute
Van Hemelrijck, M. (författare)
King's College London
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 (creator_code:org_t)
 
2023-01-17
2023
Engelska 9 s.
Ingår i: Quality of Life Research. - : Springer Science and Business Media LLC. - 0962-9343 .- 1573-2649. ; 32:8, s. 2127-2135
  • Forskningsöversikt (refereegranskat)
Abstract Ämnesord
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  • Purpose: Investigating the use of the EORTC bladder cancer (BC) modules by evaluating: (a) study contexts/designs; (b) languages/countries in which the modules were administered; (c) their acceptance by patients/investigators; and (d) their psychometric properties. Methods: A systematic review was performed with studies from 1998 until 20/10/2021 in five databases. Articles/conference abstracts using the EORTC-QLQBLM30 (muscle invasive BC) and the EORTC-QLQNMIBC24 (previously referred to as QLQ-BLS24; non-muscle invasive BC) were included. Two authors independently screened titles/abstracts/full-texts and performed data extraction. Results: A total of 76 eligible studies were identified. Most studies included the BLM30 (n = 53), were in a urological surgery context (n = 41) and were cross-sectional (n = 35) or prospective (n = 30) in design. The BC modules were administered in 14 languages across 19 countries. Missing data were low-moderate for all non-sex related questions (< 1% to 15%). Sex-related questions had higher rates of missing data (ranging from 6.9% to 84%). Most investigators did not use all scales of the questionnaires. One validation study for the original BLS24 led to the development of the NMIBC24, which adopted a new scale structure for which good structural validity was confirmed (n = 3). Good reliability and validity was shown for the NMIBC24 module, except for malaise and bloating/flatulence scales. Psychometric evidence for BLM30 is lacking. Conclusion: These results provide insight into how the EORTC BC quality of life modules could be further improved. Current work is ongoing to update the modules and to determine if the two modules can be combined into a single questionnaire that works well in both the NMIBC and MIBC settings.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Cancer and Oncology (hsv//eng)

Nyckelord

Bladder cancer
EORTC
Health-related quality of life
Measurement
Questionnaire development

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