WFRF:(Bailey Sebastian)
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| Fältnamn | Indikatorer | Metadata |
|---|---|---|
| 000 | 10273naa a2200997 4500 | |
| 001 | oai:DiVA.org:oru-36532 | |
| 003 | SwePub | |
| 008 | 140915s2014 | |||||||||||000 ||eng| | |
| 009 | oai:prod.swepub.kib.ki.se:129577455 | |
| 024 | 7 | a https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-365322 URI |
| 024 | 7 | a https://doi.org/10.1016/j.crohns.2013.12.0232 DOI |
| 024 | 7 | a http://kipublications.ki.se/Default.aspx?queryparsed=id:1295774552 URI |
| 040 | a (SwePub)orud (SwePub)ki | |
| 041 | a engb eng | |
| 042 | 9 SwePub | |
| 072 | 7 | a ref2 swepub-contenttype |
| 072 | 7 | a art2 swepub-publicationtype |
| 100 | 1 | a Burisch, J.u Med Sect, Ctr Digest Dis, Herlev Univ Hosp, Copenhagen, Denmark4 aut |
| 245 | 1 0 | a Health care and patients' education in a European inflammatory bowel disease inception cohort :b an ECCO-EpiCom study |
| 264 | 1 | b Oxford University Press (OUP),c 2014 |
| 338 | a print2 rdacarrier | |
| 500 | a Funding Agencies:Danish Colitis Crohn Patients Organization (CCF)Vibeke Binder and Povl Riis FoundationScientific Council at Herlev HospitalSigrid Rigmor Moran FoundationAage and Johanne Louis-Hansens FoundationMunkholm FoundationC.C. Klestrup and Henriette Klestrup FoundationKnud and Dagny Gad Andresens FoundationElse and Mogens Wedell-Wedellsborgs FoundationDirektor Jacob Madsen and Olga Madsens FoundationScanVetTorben og Alice Frimodt FoundationLaegemes forsikringsforening afBengt Ihre's foundationNanna Svartz foundationOrebro University Hospital Research FoundationOrebro County Research FoundationSwedish Foundation for Gastrointestinal researchSwedish Society of MedicineResearch Council of Southeast SwedenCounty Council of OstergotlandSwedish OrganizationInternational Organization of Inflammatory Bowel Diseases (IOIBD)Competitive State Research Financing of the Expert Responsibility Area of Tampere University HospitalECCO | |
| 520 | a Background and Aims: The EpiCom study and inception cohort was initiated in 2010 in 31 centers from 14 Western and 8 Eastern European countries, covering a 10.1 million person background population. Our aim was to investigate whether there is a difference between Eastern and Western Europe in health care and education of patients with inflammatory bowel disease (IBD).Methods: A quality of care (QoC) questionnaire was developed in the EpiCom group consisting of 16 questions covering 5 items: time interval between the onset of symptoms and diagnosis, information, education, empathy and access to health care providers.Results: Of 1,515 patients, 947 (217 east/730 west) answered the QoC questionnaire. Only 23% of all patients had knowledge about IBD before diagnosis. In Eastern Europe, significantly more patients searched out information about IBD themselves (77% vs. 68%, p < 0.05), the main source was the Internet (92% vs. 88% p = 0.23). In Western Europe, significantly more patients were educated by nurses (19% vs. 1%, p < 0.05), while in Eastern Europe, gastroenterologists were easier to contact (80% vs. 68%, p < 0.05).Conclusion: Health care differed significantly between Eastern and Western Europe in all items, but satisfaction rates were high in both geographic regions. Because of the low awareness and the rising incidence of IBD, general information should be the focus of patient organizations and medical societies. In Western Europe IBD nurses play a very important role in reducing the burden of patient management. (c) 2014 European Crohn's and Colitis Organisation. Published by Elsevier B.V. All rights reserved. | |
| 650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Gastroenterologi0 (SwePub)302132 hsv//swe |
| 650 | 7 | a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Gastroenterology and Hepatology0 (SwePub)302132 hsv//eng |
| 653 | a Quality of health care | |
| 653 | a Inflammatory bowel disease | |
| 653 | a Inception cohort | |
| 653 | a Population-based | |
| 653 | a Medicine | |
| 653 | a Medicin | |
| 700 | 1 | a Vegh, Z.u Med Sect, Ctr Digest Dis, Herlev Univ Hosp, Copenhagen, Denmark; Dept Med 1, Semmelweis Univ, Budapest, Hungary4 aut |
| 700 | 1 | a Pedersen, N.u Med Sect, Ctr Digest Dis, Herlev Univ Hosp, Copenhagen, Denmark4 aut |
| 700 | 1 | a Cukovic-Cavka, S.u Univ Hosp Ctr Zagreb, Div Gastroenterol & Hepatol, Univ Zagreb Sch Med, Zagreb, Croatia4 aut |
| 700 | 1 | a Turk, N.u Univ Hosp Ctr Zagreb, Div Gastroenterol & Hepatol, Univ Zagreb Sch Med, Zagreb, Croatia4 aut |
| 700 | 1 | a Kaimakliotis, I.4 aut |
| 700 | 1 | a Duricova, D.u IBD Ctr ISCARE, Charles Univ, Prague, Czech Republic4 aut |
| 700 | 1 | a Bortlik, M.u IBD Ctr ISCARE, Charles Univ, Prague, Czech Republic4 aut |
| 700 | 1 | a Shonova, O.u Dept Gastroenterol, Hosp Ceske Budejovice, Ceske Budejovice, Czech Republic4 aut |
| 700 | 1 | a Thorsgaard, N.u Dept Med, Cent Hosp, Herning, Denmark4 aut |
| 700 | 1 | a Krabbe, S.u Dept Med, Reg Hosp, Viborg, Denmark4 aut |
| 700 | 1 | a Andersen, V.u Dept Med, Reg Hosp, Viborg, Denmark; Dept Med, Hosp Southern Jutland, Aabenraa, Denmark; Inst Reg Hlth Res, Univ Southern Denmark, Odense, Denmark4 aut |
| 700 | 1 | a Dahlerup, J. F.u Dept Med Hepatol & Gastroenterol 5, Aarhus Univ Hosp, Aarhus, Denmark4 aut |
| 700 | 1 | a Kjeldsen, J.u Dept Med Gastroenterol, Univ Hosp, Odense, Denmark4 aut |
| 700 | 1 | a Salupere, R.u Div Gastroenterol & Endocrinol, Univ Hosp, Tartu, Estonia4 aut |
| 700 | 1 | a Olsen, J.u Dept Med, Natl Hosp Faroe Isl, Torshavn, Denmark4 aut |
| 700 | 1 | a Nielsen, K. R.u Dept Med, Natl Hosp Faroe Isl, Torshavn, Denmark4 aut |
| 700 | 1 | a Manninen, P.u Dept Gastroenterol & Alimentary Tract Surg, Univ Hosp, Tampere, Finland4 aut |
| 700 | 1 | a Collin, P.u Dept Gastroenterol & Alimentary Tract Surg, Univ Hosp, Tampere, Finland4 aut |
| 700 | 1 | a Katsanos, K. H.u Sch Med, Div Internal Med 1, Univ Ioannina, Ioannina, Greece; Sch Med, Div Gastroenterol, Univ Ioannina, Ioannina, Greece4 aut |
| 700 | 1 | a Tsianos, E. V.u Sch Med, Div Internal Med 1, Univ Ioannina, Ioannina, Greece; Sch Med, Div Gastroenterol, Univ Ioannina, Ioannina, Greece4 aut |
| 700 | 1 | a Ladefoged, K.u Dept Med, Dronning Ingrids Hosp, Nuuk, Greenland4 aut |
| 700 | 1 | a Ragnarsson, G.u Sect Gastroenterol & Hepatol, Dept Internal Med, Natl Univ Hosp, Reykjavik, Iceland4 aut |
| 700 | 1 | a Björnsson, E.u Sect Gastroenterol & Hepatol, Dept Internal Med, Natl Univ Hosp, Reykjavik, Iceland4 aut |
| 700 | 1 | a Bailey, Y.u Dept Gastroenterol, Adelaide & Meath Hosp, Trinity College Dublin, Dublin, Ireland4 aut |
| 700 | 1 | a O'Morain, C.u Dept Gastroenterol, Adelaide & Meath Hosp, Trinity College Dublin, Dublin, Ireland4 aut |
| 700 | 1 | a Schwartz, D.4 aut |
| 700 | 1 | a Odes, S.u Dept Gastroenterol & Hepatol, Soroka Med Ctr, Beer Sheva, Israel; Ben Gurion Univ Negev, Beer Sheva, Israel4 aut |
| 700 | 1 | a Politi, S. P.u UO Med Interna & Gastroenterol, Azienda Osped Istituti Ospitalieri Cremona, Cremona, Italy; EpiCom Northern Italy Ctr, Crema Cremona, Italy; EpiCom Northern Italy Ctr, Florence, Italy; EpiCom Northern Italy Ctr, Forli, Italy; EpiCom Northern Italy Ctr, Padua, Italy; EpiCom Northern Italy Ctr, Reggio Emilia, Italy4 aut |
| 700 | 1 | a Santini, A.u Karolinska Institutet4 aut |
| 700 | 1 | a Kiudelis, G.u Inst Digest Res, Lithuanian Univ Hlth Sci, Kaunas, Lithuania4 aut |
| 700 | 1 | a Kupcinskas, L.u Inst Digest Res, Lithuanian Univ Hlth Sci, Kaunas, Lithuania4 aut |
| 700 | 1 | a Turcan, S.u State Univ Med & Pharm Republ Moldova, Dept Gastroenterol, Kishinev, Moldova4 aut |
| 700 | 1 | a Magro, F.u Hosp Sao Joao, Dept Gastroenterol, Oporto, Portugal; Inst Pharmacol & Therapeut, Oporto Med Sch, Oporto, Portugal; Inst Mol & Cell Biol, Univ Porto, Oporto, Portugal4 aut |
| 700 | 1 | a Barros, L.u Hosp Vale Sousa, Oporto, Portugal4 aut |
| 700 | 1 | a Lazar, D.u Gastroenterol Clin, Univ Med Victor Babes, Timisoara, Romania4 aut |
| 700 | 1 | a Goldis, A.u Gastroenterol Clin, Univ Med Victor Babes, Timisoara, Romania4 aut |
| 700 | 1 | a Nikulina, I.u Dept Gastroenterol, Moscow Reg Res Clin Inst, Moscow, Russia4 aut |
| 700 | 1 | a Belousova, E.u Moscow Reg Res Clin Inst, Dept Gastroenterol, Moscow, Russia4 aut |
| 700 | 1 | a Sanroman, L.u Dept Gastroenterol, Complexo Hosp Univ Vigo, Vigo, Spain4 aut |
| 700 | 1 | a Martinez-Ares, D.u Dept Gastroenterol, Complexo Hosp Univ Vigo, Vigo, Spain4 aut |
| 700 | 1 | a Almer, S.u Dept Med, Div Gastroenterol & Hepatol, Karolinska Inst, Stockholm, Sweden; Dept Gastroenterol UHL, Cty Council Ostergötland, Linköping, Sweden4 aut |
| 700 | 1 | a Zhulina, Yaroslava,d 1973-u Örebro universitet,Institutionen för hälsovetenskap och medicin,Div Gastroenterol, Dept Med, Örebro Univ Hosp, Örebro, Sweden4 aut0 (Swepub:oru)yza |
| 700 | 1 | a Halfvarson, Jonas,d 1970-u Örebro universitet,Institutionen för läkarutbildning,Div Gastroenterol, Dept Med, Örebro Univ Hosp, Örebro, Sweden4 aut0 (Swepub:oru)jshn |
| 700 | 1 | a Arebi, N.u St Marks Hosp, Sir Alan Parks Physiol Unit, Univ London Imperial Coll Sci Technol & Med, London, England4 aut |
| 700 | 1 | a Houston, Y.u Hull & East Yorkshire HNS Trust, Dept Gastroenterol, Kingston Upon Hull, N Humberside, England4 aut |
| 700 | 1 | a Sebastian, S.u Hull & East Yorkshire NHS Trust, Hull Royal Infirm, Kingston Upon Hull, England; Hull & York Med Sch, Hull Royal Infirm, Kingston Upon Hull, England4 aut |
| 700 | 1 | a Langholz, E.u Dept Med Gastroenterol, Gentofte Univ Hosp, Copenhagen, Denmark4 aut |
| 700 | 1 | a Lakatos, P. L.u Dept Med 1, Semmelweis Univ, Budapest, Hungary4 aut |
| 700 | 1 | a Munkholm, P.u Med Sect, Ctr Digest Dis, Herlev Univ Hosp, Copenhagen, Denmark4 aut |
| 710 | 2 | a Med Sect, Ctr Digest Dis, Herlev Univ Hosp, Copenhagen, Denmarkb Med Sect, Ctr Digest Dis, Herlev Univ Hosp, Copenhagen, Denmark; Dept Med 1, Semmelweis Univ, Budapest, Hungary4 org |
| 773 | 0 | t Journal of Crohn's & Colitisd : Oxford University Press (OUP)g 8:8, s. 811-818q 8:8<811-818x 1873-9946x 1876-4479 |
| 856 | 4 | u https://academic.oup.com/ecco-jcc/article-pdf/8/8/811/13072230/8-8-811.pdf |
| 856 | 4 8 | u https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-36532 |
| 856 | 4 8 | u https://doi.org/10.1016/j.crohns.2013.12.023 |
| 856 | 4 8 | u http://kipublications.ki.se/Default.aspx?queryparsed=id:129577455 |
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