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Sökning: onr:"swepub:oai:DiVA.org:uu-509148" > Acceptance and Comm...

Acceptance and Commitment Therapy for people living with motor neuron disease : an uncontrolled feasibility study

Gould, Rebecca (författare)
UCL, Div Psychiat, Wing B,6th Floor Maple House,149 Tottenham Court R, London W1T 7NF, England.
Rawlinson, Charlotte K. (författare)
UCL, Div Psychiat, Wing B,6th Floor Maple House,149 Tottenham Court R, London W1T 7NF, England.
Thompson, Ben (författare)
Univ Sheffield, Sch Hlth & Related Res, Clin Trials Res Unit, Sheffield, England.
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Weeks, Kirsty (författare)
UCL, Div Psychiat, Wing B,6th Floor Maple House,149 Tottenham Court R, London W1T 7NF, England.
Gossage-Worrall, Rebecca (författare)
Univ Sheffield, Sch Hlth & Related Res, Clin Trials Res Unit, Sheffield, England.
Cantrill, Hannah A. (författare)
Univ Sheffield, Sch Hlth & Related Res, Clin Trials Res Unit, Sheffield, England.
Serfaty, Marc (författare)
UCL, Div Psychiat, Wing B,6th Floor Maple House,149 Tottenham Court R, London W1T 7NF, England.;Priory Hosp North London, London, England.
Graham, Christopher (författare)
Univ Strathclyde, Dept Psychol Sci & Hlth, Strathclyde Psychol, Glasgow, Scotland.
McCracken, Lance, 1962- (författare)
Uppsala universitet,Institutionen för psykologi
White, David (författare)
Univ Sheffield, Sch Hlth & Related Res, Clin Trials Res Unit, Sheffield, England.
Howard, Robert (författare)
UCL, Div Psychiat, Wing B,6th Floor Maple House,149 Tottenham Court R, London W1T 7NF, England.
Bursnall, Matt (författare)
Univ Sheffield, Sch Hlth & Related Res, Clin Trials Res Unit, Sheffield, England.
Bradburn, Mike (författare)
Univ Sheffield, Sch Hlth & Related Res, Clin Trials Res Unit, Sheffield, England.
Al-Chalabi, Ammar (författare)
Kings Coll London, Maurice Wohl Clin Neurosci Inst, London, England.
Orrell, Richard (författare)
UCL, Inst Neurol, Dept Clin & Movement Neurosci, London, England.
Chhetri, Suresh (författare)
Lancashire Teaching Hosp NHS Fdn Trust, Preston, Lancs, England.
Noad, Rupert (författare)
Derriford Hosp, Dept Neuropsychol, Plymouth, England.
Radunovic, Aleksandar (författare)
Barts Hlth NHS Trust, London, England.
Williams, Tim J. (författare)
Newcastle Upon Tyne Hosp NHS Fdn Trust, Newcastle Upon Tyne, England.
Young, Carolyn J. (författare)
Walton Ctr NHS Fdn Trust, Liverpool, England.
Dick, David (författare)
Norfolk & Norwich Univ Hosp, Norwich, England.
Lawrence, Vanessa (författare)
Kings Coll London, Inst Psychiat Psychol & Neurosci, Hlth Serv & Populat Res Dept, London, England.
Goldstein, Laura (författare)
Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Psychol, London, England.
Young, Tracey (författare)
Univ Sheffield, Sch Hlth & Related Res, Sheffield, England.
Ealing, John (författare)
Salford Royal NHS Fdn Trust, Manchester Ctr Clin Neurosci, Salford, England.
McLeod, Hamish (författare)
Univ Glasgow, Mental Hlth & Wellbeing, Glasgow, Scotland.
Williams, Nicola (författare)
Univ Oxford, Primary Care Clin Trials Unit, Oxford, England.
Weatherly, Helen (författare)
Univ York, Ctr Hlth Econ, York, England.
Cave, Richard (författare)
UCL, Language & Cognit, London, England.
Chiwera, Theresa (författare)
Kings Coll London, Maurice Wohl Clin Neurosci Inst, London, England.
Pagnini, Francesco (författare)
Univ Cattolica Sacro Cuore, Dept Psychol, Milan, Italy.
Cooper, Cindy (författare)
Univ Sheffield, Sch Hlth & Related Res, Clin Trials Res Unit, Sheffield, England.
Shaw, Pamela (författare)
Univ Sheffield, Sheffield Inst Translat Neurosci, Sheffield, England.
McDermott, Christopher (författare)
Univ Sheffield, Sheffield Inst Translat Neurosci, Sheffield, England.
Group, COMMEND Collaboration (författare)
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UCL, Div Psychiat, Wing B,6th Floor Maple House,149 Tottenham Court R, London W1T 7NF, England Univ Sheffield, Sch Hlth & Related Res, Clin Trials Res Unit, Sheffield, England. (creator_code:org_t)
Springer Nature, 2023
2023
Engelska.
Ingår i: Pilot and Feasibility Studies. - : Springer Nature. - 2055-5784. ; 9
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
Stäng  
  • Background: Motor neuron disease (MND) is a fatal, progressive neurodegenerative disease that causes progressive weakening and wasting of limb, bulbar, thoracic and abdominal muscles. Clear evidence-based guidance on how psychological distress should be managed in people living with MND (plwMND) is lacking. Acceptance and Commitment Therapy (ACT) is a form of psychological therapy that may be particularly suitable for this population. However, to the authors' knowledge, no study to date has evaluated ACT for plwMND. Consequently, the primary aim of this uncontrolled feasibility study was to examine the feasibility and acceptability of ACT for improving the psychological health of plwMND.Methods: PlwMND aged >= 18 years were recruited from 10 UK MND Care Centres/Clinics. Participants received up to 8 one-to-one ACT sessions, developed specifically for plwMND, plus usual care. Co-primary feasibility and acceptability outcomes were uptake (>= 80% of the target sample [N = 28] recruited) and initial engagement with the intervention (>= 70% completing >= 2 sessions). Secondary outcomes included measures of quality of life, anxiety, depression, disease-related functioning, health status and psychological flexibility in plwMND and quality of life and burden in caregivers. Outcomes were assessed at baseline and 6 months.Results: Both a priori indicators of success were met: 29 plwMND (104%) were recruited and 76% (22/29) attended >= 2 sessions. Attrition at 6-months was higher than anticipated (8/29, 28%), but only two dropouts were due to lack of acceptability of the intervention. Acceptability was further supported by good satisfaction with therapy and session attendance. Data were possibly suggestive of small improvements in anxiety and psychological quality of life from baseline to 6 months in plwMND, despite a small but expected deterioration in disease-related functioning and health status.Conclusions: There was good evidence of acceptability and feasibility. Limitations included the lack of a control group and small sample size, which complicate interpretation of findings. A fully powered RCT to evaluate the clinical and cost-effectiveness of ACT for plwMND is underway.

Ämnesord

SAMHÄLLSVETENSKAP  -- Psykologi -- Tillämpad psykologi (hsv//swe)
SOCIAL SCIENCES  -- Psychology -- Applied Psychology (hsv//eng)

Nyckelord

Motor neuron disease
Acceptance and Commitment Therapy
Feasibility
Acceptability
Psychological health

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